UK Government: listening to parents?

Don’t Screen Us Out  |  UK & Ireland
Date posted:  1 Dec 2019
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UK Government: listening to parents?

photo: iStock

Campaigners were thankful in November for the amended advice on Down’s syndrome on NHS Digital, as it takes a more positive approach to the condition.

The guide states: ‘People with Down’s syndrome will have some level of learning disability. This means they’ll have a range of abilities. But, like everyone, people with Down’s syndrome have their own personalities, things they like and dislike and things that make them who they are.’ A large yellow box states ‘Important. It’s your choice whether or not to have any screening tests’.

However, Positive About Down Syndrome’ (PADS), a new report shared with MPs in October, highlighted the ongoing discrimination towards expectant parents of a baby with Down’s syndrome. The report called on MPs to ensure there is access to support groups available at hospital screenings.

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